The public is still largely unaware or misinformed about neuro-endocrine-immune diseases. We must continually work to reduce the stigma and bias against patients already carrying a heavy burden of chronic disease.
We have worked with others, given awareness grants to others and initiated projects that have increased awareness of these illnesses, their nature and their impact. Social media and public service announcements have also helped. But much more needs to be done.
Often, advocacy efforts and research findings lead to news reports that increase awareness.
Public awareness is not only important for current patients, it is also beneficial for the person who has symptoms of a neuro-endocrine-immune disease but has not yet been diagnosed. Often, a news report on a disease makes someone aware that they too have that disease. This may lead to their finding a doctor who can provide appropriate treatments.
Last update: September 14, 2014
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