Improving patient quality of life includes increasing access to
knowledgeable health care. Medical schools do not provide thorough
education of these complex diseases because they do not fall under the
established specialties that focus one body system or organ. We work to
educate medical providers on NEIDs.
Additionally, patients need to become more knowledgeable about how to
manage their illness and how they can effectively advocate for change. Through many means, we empower patients with knowledge and
Last update: September 14, 2014
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