Our history is rich with collaboration and continual growth.
Michigan Start: In 1988, Janet Wildeboer started the West Michigan Chronic Fatigue Syndrome Support Group as a 501(c)(3) organization in Michigan.
In 2009, the small group was re-energized when Lori Chapo-Kroger took the lead, and the name changed to "CFS Solutions of West Michigan." It is now the PANDORA Org Grand Rapids, Michigan Support Chapter. Activities included local patient education, support group meetings and local and national advocacy.
Florida Start: In 2002, the Florida organization started as a 501(c)(3) named the Patient Alliance for Neuro-endocrine-immune Disorders Organization for Research and Advocacy, Inc. Founder Marly Silverman came up with the name and acronym through a dream. As Pandora's box released hope at the end after the release of suffering, Marly wanted to start an organization that provided hope to people who suffer from neuro-endocrine-immune diseases.
Inspired by Tom Hennessy's advocacy leadership, Marly Silverman saw that more can be accomplished when patients with neuro-endocrine-immune diseases work together. P.A.N.D.O.R.A. Inc. became a well-known name in national advocacy with the goal of improving patient quality of life.
New PANDORA Org
Collaboration between the Florida and Michigan organizations led to a new organization named "PANDORA Org" when Marly Silverman retired. Lori Chapo-Kroger is the president. The new organization is based in Michigan. PANDORA Org continues many of the programs of the former two organizations.
Last update: February 20, 2014
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