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ME/CFS Gov. Inaction

The U.S. government funds ME/CFS research much less than other similar diseases, even though ME/CFS is much more prevalent.

U.S. National Institutes of Health estimated 2013 research funding per disease:

  • Multiple sclerosis — $116 million (prevalence of 320,000 - Walter Kluwer Health Clinical Solutions)
  • Lupus — $109 million (prevalence of 322,000 to 1.5 million - CDC)
  • West Nile Virus — $29 million (5,674 cases reported in 2012 - CDC)
  • Lyme disease — $25 million (prevalence of 24,400 to 240,000 - CDC)
  • Fibromyalgia — $13 million (prevalence of 6.2 million - CDC)
  • ME/CFS — $5 million (prevalence of 1 million - CDC)

Even hay fever received more NIH research funding in 2013 than the debilitating and sometimes fatal myalgic encephalomyelitis / chronic fatigue syndrome.


Centers for Disease Control and Prevention 2013 Operating Plan:

  • Lyme disease $8.263 million (prevalence of 24,400 to 240,000 - CDC)
  • Prion disease-$4.71 million (421 cases in 2012 - CDC)
  • ME/CFS —$4.462 million (prevalence of 1 million - CDC)
For FY2013, the CDC asked for more funding for other emerging infectious diseases, but asked for less funding for ME/CFS and prion diseases. The overall funding in that area of the CDC increased, but not for ME/CFS.

(right: Slide from FY2013 CDC President's Budget Request)
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