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What if I have MCS/EI?

Finding a physician:

A rheumatologist, allergist or immunologist may be the best options for finding a knowledgeable physician.

Someone with MCS/EI avoids triggers, such as fuel fumes.

Support from others:
As with any chronic disabling disease, environmental illness will have an effect on your relationships and impact your loved ones. You will need the understanding and emotional and practical support of loved ones. You could share this letter with them to help them understand. You can direct them to this website or to other national or state organizations.


Read Dr. Lisa Nagy's story.

Treatment options:

Most people with MCS/EI first identify the triggering substances and avoid them. This may mean drastic changes in the patient’s household, including removing carpet, remodeling for mold removal, changing cleaning products and changing to natural fiber clothing. Some are not able to continue employment because of chemicals in the work environment, and some may even temporarily live in their auto or in outdoor camping tents to find relief from the symptoms.

 

Physicians may recommend a detoxification treatment. This type of treatment should only be tried under the care of a knowledgeable physician.

Treatment may include dietary changes and supplements. Discuss this with your physician.

 

Prognosis:

Very little is known of the rate of improvement to MCS/EI patients. Some do report that, over months or years, after avoiding triggers, they see improvement. However, some continue to get worse. Very concerning are the cases of multiple food intolerances to the point that the body’s need for nutrition is not filled.

The information contained in these topics is not intended nor implied to be a substitute for professional medical advice. It is provided for educational purposes only. You assume full responsibility for how you choose to use this information. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment or discontinuing an existing treatment. Talk with your healthcare provider about any questions you may have regarding a medical condition. Nothing contained in these topics is intended to be used for medical diagnosis or treatment.

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