If you think you may have ME/CFS, you should find a physician
who is well-known for treating the illness. There are not many, so you may have to travel out of your state to see one of them. You may also try seeing a physician who
has known you over a long period of time.
Because this illness is a multi-system disease, patients may find a knowledgeable or understanding physician among possibly many different specialties, such as an immunologist, infectious disease physician, rheumatologist or neurologist. Also, some patients may benefit from a team of specialists. Some patients find their internist or primary care doctor is the best one to oversee their treatment. There is no one specialty for ME/CFS.
Surgery instructions:Due to the biological abnormalities, surgeons and anesthesiologists may need to alter their standard of care for ME/CFS patients. See this advice from an expert and this card you should always carry.
A large percentage of ME/CFS patients see improvement after the initial onset. These patients will experience days where they feel some better and then have "bad days." They may experience relapses that last for months or years. After many months or years, only about 5% completely recover with very few signs of the condition. Some patients do not see any improvement and are severely disabled, even bedbound, for decades.
The information contained in these topics is not intended nor implied to be a substitute for professional medical advice. It is provided for educational purposes only. You assume full responsibility for how you choose to use this information. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment or discontinuing an existing treatment. Talk with your healthcare provider about any questions you may have regarding a medical condition. Nothing contained in these topics is intended to be used for medical diagnosis or treatment.